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Harmonizing Clinical Data Collection in Community-Based Treatment Programs for First-Episode Psychosis » Appendix

Rockville, MD

Key Features of First Episode Psychosis (FEP) and Important Aspects of FEP Course and Recovery

Summary of Key FEP Features

  • Characteristic symptoms fluctuate over time
    • Positive, negative, and disorganized
    • Anxiety and depression
  • Varying insight or awareness of illness/health
  • Increased risk for suicide, violence (esp. if untreated)
  • Impaired cognition (attention, working memory)
    • Performance on objective tests
    • Subjective experience of cognitive abilities
  • Interpersonal functioning
    • Social networks outside the family
    • Relationships with immediate family members, significant others
  • Instrumental role functioning
    • Self-care, school, and work

For Consideration: Important Aspects of FEP Course and Recovery

  • Age of onset, duration of untreated psychosis
  • Pathways to Coordinated Specialty Care
    • Contacts with police, incarceration
    • Crisis intervention, emergency department episodes
    • Number and length of inpatient hospitalizations
  • Medical and psychiatric co-morbidities
    • Risk factors for cardiovascular disease (e.g., cigarette smoking, weight gain, blood pressure, sedentary, lifestyle, etc.)
    • Alcohol and/or substance misuse
  • Service user’s satisfaction with treatment, subjective experience of stigma, recovery, and well-being
  • Time to second episode of psychosis